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The system can’t keep pace with MND

Now is the time for change

Too many people with MND are not getting the support they need to live their lives safely. We need your help.


It's about

MND is brutally fast.  People with MND can quickly lose their ability to walk, talk, eat and breathe unaided. They need services, such as social care and home adaptations, to help them live their lives safely. 

Services need put in place quickly yet many people wait too long. Tragically, some never receive what they need in time. We need a system that can keep pace with MND.

What we're
up against

MND Scotland is here to guide people through a labyrinth of confusing processes; and to be here when the system fails. Every year we see the same problems again and again.

Home adaptations

Delays in adaptations can leave people with MND trapped in their homes.

Accessible housing

Some people with MND never get the accessible home they need in time.

We need your help

As we work with MSPs to ensure the voices of people affected by MND are heard, we need your stories to show politicians why the system can’t keep with MND. 

Share your story

Now is the time
for change

In January, we sent MND Scotland's Manifesto to all the political parties and MSPs. Then, in the run up to the 2021 Scottish Parliament elections, our supporters emailed their local candidates to ask them to pledge their support for our manifesto.

In the manifesto, we call for the next Scottish Government to introduce: 

  1. A National Care Service for Scotland
  2. A National Accessible Housing Strategy

Please be aware that our manifesto was designed highlight the lack of time people with MND have, and features imagery, text and stories some may find upsetting.

Download our manifesto


Share your

Have you been affected by delays? 

Politicians value hearing directly from people affected, and you can make a big difference by sharing your experience with us as we continue to campaign for change.

You can help to:

  • Raise awareness of system failures
  • Help keep MND on the political agenda
  • Increase the chance of effecting change

Now is the time to be heard

Share your story



to help us be there for people
when the system fails

We need everyone to take action

Please share with your family and friends